Here are some pictures from the holidays! I love my family!
My beautiful niece, Bella Grace. She has since pulled out her NG-tube. The possibility of a G-tube is still being discussed. I love her so much!
My cute and crazy nephew, Zachary!
Christmas surprise! Look at how happy Micah is, mid-air and all! They love it.
Kelly’s puppy dog, Axle boy.
Wonderful Uncle Coleman playing with Micah.
Cute Bella Grace!
Out on a Christmas hike!
Hanging out, wrapping presents
Best Smores Hot Chocolate! I saw it on a cute blog and had to do it. Roast the marshmallows with the flame thrower, then crumble up graham crackers, throw on some chocolate chips… what do you get…
This yummy, delicious drink!
We spent our New Years Eve applying to Live with Kelly Ripa to win a trip to New York! I hope we win! =) We shared our transplant story for our reason why we deserve a girls night out trip. Almost dying counts in my book haha
hi sorry this might be a bit upfront but what condition does your niece have? shes beautiful and seems to have a lot of things in common with my 7 month daughter who has ponto cerebellar hypoplasia. i hope for your familys sake it is a different condition but if it is that i just wanted to let you know there are support groups on facebook if you or your family is interested. love.
tessa.mckay1554@gmail.com
p.s you can email me if you like
My niece was born with aicardi. Her vision is extremely compromised, we are praying for a miracle and that she won’t be blind. Her brain didn’t finish developing… so she has seizures and her development is very delayed. She is 7 months old and can’t hold her head up, we are lucky if we get a half smile out of her and she barely interacts and can’t sit up. She is beautiful though and as sweet as can be! I love her so much. I am so sorry to hear about your daughter. I don’t know what that is but it doesn’t sound good… Praying your little girl is healed as well as Bella !