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47… long gone!

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Two days ago on Tuesday, I had my 2nd clinic appointment. Traffic was horrible, we woke up at 5 and didn’t get there until 9:30am! 4 1/2 hours of traffic… I got my 47 staples, slowly but surely, removed!

The doctor was a little worried about one of my labs. My alkaline phosphate has jumped 40 points since I have been home from the hospital. Alkaline phosphate is a liver function lab. He said it could either mean rejection or regeneration. I say it is the latter and not the former! But he said they are going to keep a watch on it. My TAC level was a bit low again at 5.7. They increased my anti-rejection medication, prograf, again! They have increased it every week since I have been home. Prograf is so hard on the kidneys, they want me to drink 64 ounces of water a day! Do I look like nemo? I don’t think so! The doctor was very impressed with my progress. Instead of going back next week like I thought, they told me I don’t have another appointment for a month! I am free from San Francisco for a whole month!!

I am finally feeling better, I have my energy back, it may not be a ton of energy but I am able to get up and do things again like I was last week. I think it may have been a bug going around. My brother was totally exhausted too for no apparent reason and with no other symptoms. Oh, I have some more good news!

Two nights ago I slept on my back (not propped up on 50 pillows) for the first time! My back pain has been horrible lately (my body/muscles were totally relaxed for 20 hours on a hard table… I am sorry back!). Other transplant recipients told me to try sleeping on my side. So last night I slept on my side! I think I need to make a post with pictures on how to do this, it took me 10-15 minutes to figure it out haha! It did hurt my incision a little though, but my pain pills cover incision pain where as they don’t touch my back pain, so it was worth it, and it did help take some of the pressure off of my back. Though, doctors and transplant patients say the pain can last up to 6 months. Others have suggested acupuncture, stretching and standing up straight regardless of incision pain. But, the good news is that I made progress.. sleeping on back, side… 3 weeks ago seemed impossible!

I almost forgot… so my staples are gone! It was slightly painful/uncomfortable. A few, 5-6 of them, hurt though because my skin had healed around them and my Nurse Practitioner had to yank them out. She is so sweet though, I really like her. I was so thankful Coleman was there to hold my hand. My staples were so red and angry, especially on my right side, that is the only place I have a “real” scab, the rest are very superficial scabs. They said I have healed up really well.

I want to take another picture soon of my awesome rainbow scar. It looks so good without the staples. It seems like it has been more than 3 weeks since I have had my transplant. The hardest part has been the expectations from myself and others. There are good days and bad and I pray that the good would soon greatly outnumber the bad. But even my bad days are good because I am so blessed.

PRAYERS:
If you could please keep my niece Bella in your prayers. We recently got some very difficult news… that is all I will say for now until we know more. She is so sweet, beautiful and she is only 2 months old. She needs a miracle though. And I know first hand that miracles are God’s specialty. Also, if you could pray for my back pain and that Kelly’s incision would heal up faster, she is having some issues with it. We are only looking like slight hunchbacks these days though, so that is good news.

POST TRANSPLANT PATIENTS:
For those who are reading and are post-transplant… I will try to explain how lay on your side to alleviate back pain. First lay onto your side on a big giant pillow (laying straight back hurts those stomach muscles that were shredded). Then roll onto your back. Pick a side (no, the liver side shouldn’t hurt more than your left), whatever side is more comfortable for you. Then put a long/big pillow pushed up against your back. Hold onto bed and pull yourself onto your side. Put a firm pillow between your knees and have a pillow or two to cuddle with. That is the art of sleeping on your side post-transplant. I am sure I confused you, honestly it will probably be different for everyone but I still would have liked for someone to try to explain to me how to do it.

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About Kortni

I received a living donor liver transplant from my amazing and selfless sister, when it failed, I got a 2nd transplant 4 days later from my other hero! I have an amazing family and wonderful, supportive boyfriend. I love hiking, photography, natural health care, being outdoors and crafts. Did I mention that Jesus is my best friend and He has blessed me immeasurably!

4 responses »

  1. Hi Kortni,
    Your back pain should start getting better in the next few weeks. How much are you walking daily? A month after my transplant I started staying at our daughters house while Linda worked. At that time, the grandkids were 8 and 5. From the time I was dropped off until Linda picked me up in the evening, the kids were like magpies “grandpa, grandpa, grandpa,” I was constantly getting up and walking around seeing what they wanted even though it was extremely hard at first. After a month of “their” exercise classes my back pain totally went away and my ability to move around was amazing. I did keep wearing my binder tho, didn’t want to put a strain on my incision. Did you save a staple???
    Hugs,
    Rex

    Reply
    • Hi Friend =) Happy Birthday (again!) haha…. Ugh I am not walking as much as I need to be. I live in the country and it is red dirt everywhere… Maybe I need to go stay with my sister and her 3 rugrats. My niece came over today and they really do push your limits and it is impossible to say no to the little ones you love vs your caregiver telling you to get up and walk hah. I need to consider joining a gym or at least swimming in a few weeks (they told me I can lightly exercise at 6 weeks). I am so glad to hear you say a few weeks… everyone else has said months =\ but my recovery has been fast and I am young so I do have that on my side. And God. I did have 47 staples… What do you mean you had your binder on? My sister bought a pregnancy belly band to hold her incision, she said it feels great. I am assuming you are talking about something similar? I love your advice and really appreciate you sharing your wisdom and experience, thanks

      Reply
  2. Hi Korntni,

    Great Post….as usual! I’ll have to remember the side sleeping blog. That seems like it’s going to come in very handy. I’m glad your spirits are improving. As always, my family and I are sending you out prayers, positive energy, love and light! Keep up the great work. You are such an inspiration to me and my family.

    Good night

    Joe

    Reply
    • Hey Joe! Thank you! You are so sweet. And, as always, I appreciate the love and prayers and kind words. Have a wonderful night and God bless you and your family and I pray you get your liver soon! =)

      Reply

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