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Lab Draw Monday

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I am having an off day. My brain still feels like mush from all the anesthesia, medications and pain killers. My pain is still about the same as when I was sent home from ER, maybe a very small improvement. However, I am also taking a lot more pain meds too, so that is probably why I say “small improvement” because it’s really thanks to the pain killers. The pain has remained in the same spots, mostly in my shoulder blade and when I take deep breaths it is still in that kidney area (bottom of my liver).

I researched pleural effusions online and found out that they can be excruciatingly painful. Sometimes people develop so much fluid they have to be tapped! (That is what they did to my abdomen when I had ascites fluid in it pre-transplant, they stick a needle into your lungs and take off the fluid so that you can breathe!). Breathing is painful! So is moving.

Also, if the fluid from the pleural effusion, pushes on one’s diaphragm then it can cause extreme referred pain to the abdomen, neck and…. shoulder blade! So at least I know why I am having shoulder blade pain. The pain is the worst at night and especially in the mornings. I need help getting up from the chairs again (Yes, I have been sleeping in the chairs again all week.) I am more than ready for the fluid to be absorbed and the pain to leave…

This morning we woke up and went to get my blood drawn. My favorite guy was there again, Kimon, he knows how to draw blood! He did it in one poke, if you can call it that, because I didn’t even feel it. I think he might be an angel! haha We also got my CAT Scan results put on a CD to take with us tomorrow for my UCSF clinic appointment.

I am hopeful for tomorrow. I hope they do some testing or some kind of work up to try to fix me up, refer me to a pain specialist or at least give me some advice for dealing with this pleural effusion. Please pray I get a very caring doctor tomorrow at clinic that will want to help me with getting the pain under control and that he/she will really hear me.

On the bright side, I have another book coming soon. I get bored with tv, facebook and in this much pain I haven’t been able to do much. I have been reading my bible more which is always good. I always struggle with that which makes no sense because once I open it and get into it, I absolutely love it.

When I was in the hospital someone gave me a book by Julie Klassen (Sadly with my meds, I don’t even remember who, if you are reading this and gave me that book, please let me know! It’s been driving me crazy… possibly my aunt or weegi…). It was one of the best books that I have read. Similar in style to Jane Austen! I love books however I finish them in 1-2 days (400 page books, thanks for the quick reading genes daddy-o)! Since then I have ordered two more of her books and each time it is better and better… my newest Julie Klassen book will be here in a few days! =D Focus on the happy little things in life and not the big negative things! (Books that make you smile vs. pain that makes you cry). Life is 10% what happens to you and 90% what you make of it.

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About Kortni

I received a living donor liver transplant from my amazing and selfless sister, when it failed, I got a 2nd transplant 4 days later from my other hero! I have an amazing family and wonderful, supportive boyfriend. I love hiking, photography, natural health care, being outdoors and crafts. Did I mention that Jesus is my best friend and He has blessed me immeasurably!

4 responses »

  1. Hi Kortni –
    I just recently found your website. What a wonderful site. I had my liver transplant at UCSF on May 30 (Memorial day). I wish I had ‘journaled’ my experiences, but I was too sick to do that. My sister was my caregiver and she wrote down things the doctor said.I’m sorry your first liver didn’t work out – what a wonderful and brave sister you have!!

    Jesus is awesome and I am alive because of many miracles. I find a comfort in your posts, because I can identify with many of them.

    Hang in there!
    I know everyone’s experience is different, but I believe that the pain will eventually subside and you will start to feel ‘normal’ again. In the meantime, thanks for posting!

    Gentle Hugs (because I know how painful they can be)

    Linda

    Reply
    • Hi Linda!!

      It’s so fun hearing from other UCSF patients! Thank you so much for the sweet compliments on my blog. I know how you feel, I read a lot of liver transplant blogs pre-transplant and it helped me to know what to expect, that is when I decided to do the same for others. I am glad us post-transplanters can relate! And CONGRATULATIONS on your new liver! That’s pretty neat you got it on “memorial” day… a day that will never leave your memory I’m sure! I would have to agree and so glad that God has worked miracles in your life. Well, as I look around I begin to recognize His miracles in everything, everyone too! Having a transplant just makes you that much more aware, that much more grateful, I am sure you understand. Thanks for the gentle hugs too… they can hurt! hahaha

      Reply
  2. Honey, I just can’t stand that your troubles and pain continue, especially since you were doing so well. I understand that it’s not out of the norm, but my heart just hurts for you. Praying with you about your appt tomorrow.

    Reply

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