I am sick again. I’m not quite sure if it is a cold or something else. I have had a fever for the last day, on and off. It’s actually really weird, my body can’t seem to regulate my temperature. I go into a cold room and my temperature drops to 96 and if I go into a warm room I get a fever. That just isn’t normal! I also have a sore throat, stomach pain, headache and a runny nose. I’ve also been battling some SERIOUS fatigue. It is extremely frustrating because I am supposed to be all healthy and happy now (well, I’ve ALWAYS been happy!) and I am so tired all the time. Coleman tells me all the time that I went through two huge surgeries but it’s been 4 months already, I want to feel human! I really hope it gets better, everyone says the first year post-transplant is really rough and from there on it gets easier (and those people only had one transplant).
I called the on-call transplant doctor last night because I had a temperature of 101. She said that I am ok for now, as long as my fever doesn’t go higher or my symptoms don’t get worse. I’m glad I didn’t have to go to ER (the symptoms I was having last night fit into the category of possible organ rejection). I need to go get my prograf levels drawn to make sure everything is fine. Other good news? Coleman comes home tonight!!
Bella-Grace was taken to Oakland Children’s hospital yesterday after being in the hospital in Reno for over a week, with pneumonia and on oxygen because she is having trouble breathing. They might need to put a feeding tube in her (she aspirates every time she eats, and it gets in her lungs and thus makes it hard for her to breathe). They will be running tests over the next few days to determine if there is anything else that can be done instead of a feeding tube! We are hoping and praying they figure something out and she is home for Christmas! Please keep her in your prayers, she is an absolute doll!